tag:blogger.com,1999:blog-6198863797546159469.post5569123958115482392..comments2017-12-21T05:10:28.431-08:00Comments on Hilarious, Messy and LOUD!: Maya Journey: Hope is Never LostNate Smith Familyhttp://www.blogger.com/profile/09997434367577497710noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6198863797546159469.post-9221025839913917622016-07-31T08:19:27.412-07:002016-07-31T08:19:27.412-07:00This comment has been removed by the author.Gillianhttps://www.blogger.com/profile/07404524375069106366noreply@blogger.comtag:blogger.com,1999:blog-6198863797546159469.post-35439951688648085892016-07-31T08:17:47.200-07:002016-07-31T08:17:47.200-07:00Bambie,
This journey we are on with Maya has defin...Bambie,<br />This journey we are on with Maya has definitely supplied bumps and bruises, and you are right, things have gotten a zillion times better than that first introduction to what we then called TRISOMY 18 (epic) and what we now KNOW as our sweet baby Maya.<br />I have been pondering a lot about what helps when someone is going through a difficult time, and lately I have cause to believe that kind words, inspired words, encouraging words, have really lent me strength and comfort, thank you for sharing yours.<br />Much love.Gillianhttps://www.blogger.com/profile/07404524375069106366noreply@blogger.comtag:blogger.com,1999:blog-6198863797546159469.post-80666980190829903992016-07-28T13:07:54.832-07:002016-07-28T13:07:54.832-07:00Oh-me-oh-my! I can't believe that they talked...Oh-me-oh-my! I can't believe that they talked to you like that! It makes my blood boil! All through our stuff with Jeremy there was always concern for him as well as me. There were points when the specialists were rather direct in recommending that we let him go, and still at appointments I have to confirm that he's full code (meaning that they will resuscitate him if something happens), but they never talked about him as if he was already gone. Wow, on the depression med push as well! I never received anything like that. It's crazy how our experiences can be so similar and yet so different. <br /><br />I remember so vividly sitting in sacrament one time not long after Jeremy had been born--when we still weren't sure if he was going to make it through the week. We sang "Be Still My Soul" and halfway through the first verse I was bawling--tears just cascading down my cheeks. That hymn had never really had much meaning to me before, but it was just what I needed at that moment. The Spirit was so strong. <br /><br />I can personally attest to how lonely, how hard, and how amazingly devastating it is to have a special needs child, but I can also tell you that there is hope, and joy, and love--so much love--not just from your little angel, but from strangers and family and friends. I've been in that tar pit. Your whole life has changed and it will never be the same, but I can tell you that you will find a new normal and that things will get better. <br /><br />Your family is in our prayers.<br /><br />--Bambie and JoshJupiterhttps://www.blogger.com/profile/17040989464806750437noreply@blogger.com